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Interstitial Lung Disease – Follow Up.

When ever I open my email I see atleast one question on interstitial lung disease. I am glad that there is a significant increase in awareness about the disease. Unfortunately awareness alone can not cure this disease. This disease interstitial lung disease is a progressive disease that can only be controlled. All the medications like the corticosteroids, bronchodilators, anti-inflammatory drugs, mucolytics are only aimed at retarding the disease process and not reversing or curing the disease.

People ask me if there are any surgical options. Yes one can try a lung transplantation as one of the options provided many conditions are satisfied. Most of the surgeons are not very keen about lung transplantation as the results are not as rewarding as in COPD or cystic bronchiectasis.

My advise and opinion about this illness is now that many are getting to know about the disease they should find out ways and means to get to prevent this disease.Interstitial lung disease can be secondary to a systemic illness. This can also be caused by some drugs or dusts. They cause inflammation and scarring in the lungs that are permanent. Lung contains small sacs called alveoli that get thickened in ILD and the tissue surrounding it also gets thickened and scarred causing permanent damage. Quitting smoking can prevent ILD from worsening. In other words prevention is better than thinking of cure. Respiratory disease is a silent killer unlike heart disease which makes a big noise and is treatable disease too by surgical means. There are no satisfactory and fool proof surgical methods to cure this disease.

Another very good option to slow down or retard this disease is use of oxygen. This method unfortunately is not liked by many. Many think resort to oxygen is last step or a step before. Contrary to this belief I must add nocturnal oxygen supplementation is one of the best methods of improving quality of life if started early.

23 Comments
  1. Good ad to my knowledge. First time I got pt of ILD.Net is best TEACHER! No necesity of MMC cr
    points atending any lecture .
    Yhanks.

  2. Very informative and straight. Can I get specific advice in case of my mother yesterday declared as an ILD patient by the attending Doctors at PCRI, Delhi University, Delhi??

  3. my mother is suffring from ild since last 4 years and inheling oxygen 24 hrs at 3.5-4 unit. so, i just whant to know that lungs transplantation is possible and she can get the benifit of it.

  4. Dear sir, My father was diagnosed with ILD in 2008 and since then he has been taking steroid such as Azoran, his health has being detoriating since then,these days he is on regular oxygen therapy nowdays there is a drug called Pirfenex in discussion that is said to be helpful for ILD patient.I just wanted to know is will pirfenex help patient advanced stage of this illnes. shall we go for checking this new medicine or will it work in his case at this stage? Please suggest about it?

  5. My mother was diagnosed ILD by doctor in June-2012 then she was admitted in hospital for a week, since she is taking steroid like Dezocart/Defocart, Azoran, Pirfenex, Aldorace, Mucotab. But she is not improving more. She have gastric trouble after taking these medication for this taking Burpex. Sometimes she looks better. She is taking Oxygen 2 liter/min for whole night. She is taking dulin neoblizer.
    Please suggest? Medications is going correct or not.

    • Hi Mukul..
      Even my mom was diagnosed with ILD 2 years ago and taking the same steroids and nebulizer as u mentioned. But after taking these steroids she has put on so much weight.Sometimes she is good but sometimes she is suffering a lot..Where are u treating ur mom?? My mom is getting treated in CMC Vellore.

  6. Has anyone noticed the positive results of “Cipla’s Pirfenex” medicine for IPF (Idiopathic Pulmonary Fibrosis). Just now our doctor suggested my mother this medicine for IPF symptoms.

    Any side effect of Pirfenex?
    Any better medicine?

    Regards

  7. Dear Surendra,
    I have received complaints from many patients who were using allopth medicines for IPF. I asked them to discontinue it slowly due to side effects. However advised them to start Pranayam, Yogasana,Diet changes and Ayurvedic Medicines.
    For free advice and more details contact plakhapate@gmail.com
    Mobile No 91-9867069587.

  8. Dear All,
    My wife (present age 56 years) is cured from IPF .
    She does Pranayam. Yogasana and takes Ayurvedic medicines.
    Changes in diet is also important.
    For free guidence contact plakhapate@gmail.com
    Mobile No 91-9867069587 Landline 91-22-27702655

    Prakash Lakhapate

    • Dear Prakash,
      My mother is detected ILD last year. She is also undergoing DOTS course for last two months since she recently diagnosed with TB after culture testing of bronchoscopy. Whether she will get recovered after DOTs course is completed for six. What kind of diet is recommended for ILD patient.

    • Dear Parkash,

      My wife age 44 years is detected ILD last year & on steroids for last 8 months symptoms of dry cough.I read your massage please help? I am from ghaziabad

  9. Dear All,
    In five years so far 170+ patients from all over the world contacted.Those who have followed our instructions are benefitted.
    P.J.LAKHAPATE
    plakhapate@gmail.com
    M-91-9867069587

    • Dear Mr. Prakash,

      My father is diagnosed last month with ILD. He is having dry cough since last 2 years. Doctors given DOT treatment. When ILD is detected we stopped the DOT treatment. Doctors are saying that it is not curable and the medicines which doctor is giving are also having the site effects. Further doctor is saying these medicines will not cure the illness. I am helpless and I am not sure what should I do. Kindly suggest me what should I do for better health of my father. I have also mailed you the doctors prescription. If you need anything more (like X ray or CT Scan) then I can also mail you. I need your help urgently. My Phone No. is – 9826054571 E Mail – milindnyati@yahoo.co.in. I am from Indore City.

  10. All the below information is being shared from personal experience within the family.

    ILD; (pulmonary fibrosis) is such a disease which was difficult to detect at the very onset as the only symptoms were dry cough and was thus given incorrect treatment for quite a few years.

    Doctors say that there is no cure for this disease but it can only be prolonged. The only permanent cure is a Lung Transplant in which also there is 10 % risk involved. But if transplant can be considered as an option, then it should be done so at the earliest. In our case, we were not aware about lung transplants happening in Chennai till recently and it was too late as ventilation was already administered for our mother as Co2 levels had shot up considerably.
    There are lung transplants going on in India in the following hospitals :
    1. Apollo Hospital, Ayanambakkam, Chennai
    PH- 91 44 26537777
    Dr N Madhu Sankar is the surgeon
    2. Global Health City ,Chennai
    91 44 22777000
    Dr Govini Balasubramani is the surgeon
    3.Yashoda HospitalsSecunderabad, Andhra Pradesh
    91 40 27713333
    Dr AGK Gokhale is the surgeon

    Those people in the earliest phases of ILD can also try daily pranayam together with Sujok therapy as well; along with other medications; as this greatly helped to increase oxygen saturation in our case and she could reduce the external oxygen intake coming through the oxygen machine. There is a pro bono doctor in Faridabad (Delhi) rendering selfless service for Sujok –
    Dr. Ramesh Narula, Sec 22, Faridabad
    Ph. : 91 9213188501

    For further information on any of the above, pls. mail at – priyasethiya@yahoo.co.in
    (Lastly, at our individual level, we need to forgive everyone, have gratitude and stay positive.. This may seem out of context here, but has its own latent importance..)

  11. Hi Uttkarsh,

    My mother is suffering ILD from last 7 years and in early stage only She took under oxisen theorepy.From last 2 years on 24hrs at 2.5-3.5 unit. So did you receive any treatment for your mother so that I also can apply to grow my mother life. Please mail me for any info on kalpu06520@gmail.com

  12. My Mother is diagnosed with ILD with Super added infection.. Doctors prescribed steroids as the only medication with Oxygen support as levels are below saturation… 89..and is dropping if mask is removed for a minute. that means continuous oxygen is required.. also every night on NIV ventilator.

    Doctors were also saying Auto Immune disorder is the reason for ILD ..
    giving steriods for that too.. i am too concerned about side effects and they have agreed to reduce dosage.

    Request to throw some light on lung transplantation..please help…

  13. My mother-in-law is diagnosed with ILD of NSIP pattern. Please suggest if it is curable or not and the ways to treat or cure it.

  14. Dear Sir/Madam
    I am 38 years old and felt shortness of breath and consulted a doctor near my place in chennai. Was advised to take Spirometry test. Result of Spirometry test is Stage2 Restricive COPD. Now what should I do and whom should I consult for further treatment or medication since the doctor I consulted is a General physician.

  15. Dear sir,
    i am a doctor .last 4 months i diagosed as a case of sarcoidosis /?ild .after taking steroid no significant resolution in chest x ray findings . ,,i thinkgs is there incidental chest x ray detect but my complaints in mild shortness of breath durinf climbing stairs after 4 th level.actually what can i do

  16. Thank you Doctor for taking the time out to address the affected population.
    Its always sad to hear “no cause…no cure” of this dreaded disease, our only option is oxygen therapy, breathing exercise, gargling, yoga, art of living and medicines.
    I have my mother who is very ill and has scelrosis with ild, twice within this year she has been admitted to icu, once when she was breathlessness and second when she developed some infection.
    in both the cases she came out back home and using the below:
    Assurans
    Omnacortil
    Muciniac
    Prefinex
    Oxygen therapy
    Breathing exercise

    I know that these are immunosuppressive and as well strong medications unfortunately thats all what we can do.
    I have done some research wherein people use cow urine or herbs to improve lung condition, there are reports that people actually got cured from ild in scelroderma but thats obvious it can only be a miracle as data suggested 1 in 10000.

    My only question is can we really improve the lifespan of a patient, it doesnt matter amount of money spent or medication used or therapies conducted. What really matters is the lifespan, so that these patients can actually live their full life. There are reports and data on internet that does say that cure is near but not guaranteed.
    At this point I would also like to add a story of a patient who was from Germany and had Aids and also suffered from some cancer during treatment for which he underwent bone marrow operation which actually resulted in his cancer and aids as a bliss diminished from his body.
    My question here is (im not a doctor but a son who wants good for his mother) can some sort of surgery of such kind be possible as healthy red blood cell or white blood cell or maybe anything from a healthy person if infused can slowly diminish this fibrosis?

  17. In 6.5 years more than 255 patients have contacted us from all over the world for free Ayurveda consultation for interstitial lung disease
    P.J.LAKHAPATE
    plakhapate@gmail.com,
    M-91-9867069587

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